OpenPROMS

Pilot project for the implementation of Patient Reported Outcome Measures (PROMs) in Switzerland

OpenPROMS

Pilot project for the implementation of (PROMs) Patient Reported Outcome Measures in Switzerland

MIDATA, BFH, Inselspital and Brightfish have been entrusted by Eidgenössischen Qualitätskommision (EQK) with the national pilot project for the implementation of PROMs and are using the OpenPROMS solution of BFH, MIDATA and Brightfish. The solution enables the collection of standardized PROMs (patient-reported outcome measures) according to international standards. The solution includes a mobile and web-based application that allows

patients to complete PROMs questionnaires and discuss the evolution of their outcomes with healthcare professionals or from home. The pilot focuses on patients with severe cardiovascular or oncologic conditions. It will recruit 2,000 patients receiving acute and rehabilitative care over a 12-month period in hospitals in three language regions and follow them for 6 months.

The aim is to enable systematic recording and use of PROMs for quality development in healthcare in Switzerland.

Participation

BFH

Institut for Patient-centered Digital Health
Bern University of Applied Sciences BFH
Prof. Serge Bignens
serge.bignens@bfh.ch

MIDATA COOPErATIVE

Dr. Dominik Steiger
dominik.steiger@midata.coop

Brightfish

Dr. Fabio Catarinella
fabio.catarinella@brightfish.com

Partners

Brightfish helps healthcare providers capture critical data along the entire patient pathway by creating world-class, engaging, and compelling patient experiences.

The MIDATA data platform enables members of the public to compile their health records in a secure personal account free of charge and to determine if and how they are used in research projects. In this way, they can act as «citizen scientists», making an active contribution to medical research.

MIDATA serves as a data repository for its members and other participating members of the public. It is a non-profit cooperative facility that operates without offering financial incentives, similarly to blood donation services, for instance. The account holders are not paid for their intentional and voluntary «data donation». The revenue generated from the integration of their data into a scientific study is reinvested in the services offered on the platform and in a variety of smaller research projects. Start-ups, IT service providers and research groups can use the platform to offer mobile apps, such as health apps or apps for treating and monitoring patients with chronic illnesses. MIDATA is currently being used in a number of scientific health projects. In one particular project being conducted at University Hospital Zurich, for example, multiple sclerosis patients are being included in a study into the effect of treatments, which uses a tablet app to test their cognitive and motor skills. A further project, currently in development at ETH Zurich, will look at different training methods and the impact they have on muscle growth. More and more projects are being run that are directed at a wide section of the population and are of value to many – as is the case with the «Ally Science» project.

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The Bern University of Applied Sciences (BFH) offers an innovative didactic approach aimed at teaching, R&D and continuous training, using practical exercises to prepare students for professional activities in which scientific knowledge and methods are required.

Inselspital (Bern University Hospital) holds a prominent position in the Swiss healthcare system. As a competence, high tech and knowledge center, it enjoys international recognition and is a place of research.

The hospital was founded in 1354 and is deeply rooted in its community. Its attractiveness in the healthcare market is high and its services highly valued.

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