Medien

Publikationen

Napolitano S. & Steiger D. (2021). Health data ecosystems of the future need trust and citizen inclusion.

In: Brenzikofer T., Fink A., Meyer B., Ohse S., eds. Shaping the health data future – the DayOne Scenarios., 2021, pp. 29-30. Licensed under CC BY-SA 4.0.

Link

Bignens S., Sariyar M., Hafen E. (2019). Governance and IT Architecture, in Applied Data Science, Braschler M., Stadelmann T., Stockinger K. (Hrsg.)

Springer, Cham

Link

Hafen, E. (2019). Personal Data Cooperatives – A New Data Governance Framework for Data Donations and Precision Health, in The Ethics of Medical Data Donation, Krutzinna, J. & Floridi, L. (Hrsg.)

Philosophical Studies Series 137.

Link

Hafen, E. (2019). A Safe Harbour for Data, in Recommendations for an AI Strategy in Switzerland, Curioni, A. & Czornomaz, L. (Hrsg.)

SATW topical platform on Artificial Intelligence.

Link

Hafen, E., Steiger, D. & Bignens, S. (2018). Datenhoheit für die Patienten.

Schweizer Monat, Ausgabe 1054

Link

Blasimme, A., Vayena, E. & Hafen, E. (2018). Democratizing Health Research Through Data Cooperatives.

Philosophy & Technology, September 2018, Volume 31, Issue 3, pp 473–479

Link

Bignens, S. & Steiger, D. (2018). MIDATA: Ein bürgerzentriertes mHealth-Ökosystem.

spectra 121, September 2018

Link

Hafen, E. & Brauchbar, M. (2017). Data to the People! - Zur Befreiung aus der digitalen Leibeigenschaft.

Schweizer Monat, Ausgabe 1050

Link

Bignens, S. & Steiger, D. (2017). Forschen mit Gesundheitsdaten unter Kontrolle der Bürger.

Netzwoche

Link

Hafen, E. (2017). Personal Data Economy – a cooperative approach.

Inspire2Live Annual Congress 2017, Amsterdam, NL.

Link

Hafen, E. (2015, Oct 28). Freeing people from digital feudalism.

Technologist 06

Link

Hafen, E. (2015, July 7). Datenschutz: «Meine Bildungsdaten gehören mir!»

Gastkommentar Neue Zürcher Zeitung

Link

Hafen, E., Kossmann, D., & Brand, A. (2014). Health data cooperatives - citizen empowerment.

Methods of Information in Medicine, 53(2), pp. 82–86.

Link

Vayena, E., Ineichen, C., Stoupka, E., & Hafen, E. (2014). Playing a part in research? University students' attitudes to direct-to-consumer genomics.

Public Health Genomics, 17(3), pp. 158-168.

Link

Hafen, E., & Brauchbar, M. (2014, March 5). Befreiung aus der digitalen Leibeigenschaft.

Neue Zürcher Zeitung

Link

Vayena, E., Gourna, E., Streuli, J., Hafen, E., & Prainsack, B. (2012). Experiences of early users of direct-to-consumer genomics in Switzerland: an exploratory study.

Public Health Genomics, 15(6), pp. 352–362.

Link