«MitrendS»

The tablet app for Multiple Sclerosis patients

«MitrendS»

MitrendS is a novel app that allows MS patients to easily document their illness from home and discuss it with their caregiver.

 

The app helps to monitor disease progression more accurately, for more effective treatments. Multiple sclerosis (MS) has different effects in different patients. It is therefore very important to record the individually different symptoms of the disease and their course as accurately as possible for each individual patient, so that personalized therapies can be implemented. In today’s clinical practice, this is only possible to a limited extent or not at all. The MIDATA MitrendS project is a pioneer project of personalized medicine in the field of MS.
 

All data collected with MitrendS are securely stored in MIDATA. The new data collected with MitrendS are merged with existing patient data (from data silos of the university hospital; e.g. medical history, medication, data from imaging procedures, blood analyses, etc.). All data are transferred to MIDATA and stored securely. From the collected anonymous data of all users, the optimal and individually coordinated therapy approaches for each individual user can then be calculated using self-learning analysis programs (machine learning) developed by ETH researchers. These are then implemented by MS specialists at the University Hospital in Zurich.
 

«MitrendS Citizen Science» asks the community to support this MS study with reference data. Healthy people use the same app as the MS patients in the MS study and thereby provide important reference data that the patient data can be compared to.
 
 

Further information

Participation

Coordination

Prof. Dr. Ernst Hafen
ETH Zürich, Institut für Molekulare Systembiologie

Stefano Napolitano
MIDATA

Multiple Sclerosis

Prof. Dr. med. Roland Martin und Prof. Dr. med. Andreas Lutterotti
UniversitätsSpital Zürich, Klinik für Neurologie

MitrendS app

Prof. Serge Bignens and François von Kaenel
Berner Fachhochschule BFH, Institut für Medizininformatik I4MI

Data analysis

Prof. Dr. Gunnar Rätsch
ETH Zürich, Biomedizinische Informatik

Ethics

Prof. Dr. Effy Vayena
ETH Zürich, Institut für Translationelle Medizin, Bioethik

Supported by

Personalized Health and Related Technologies (PHTR)
Swiss Data Science Center (SDSC)

Video of the university of Zurich about the MS study

Project partners

The MIDATA data platform enables members of the public to compile their health records in a secure personal account free of charge and to determine if and how they are used in research projects. In this way, they can act as «citizen scientists», making an active contribution to medical research.
MIDATA serves as a data repository for its members and other participating members of the public. It is a non-profit cooperative facility that operates without offering financial incentives, similarly to blood donation services, for instance. The account holders are not paid for their intentional and voluntary «data donation». The revenue generated from the integration of their data into a scientific study is reinvested in the services offered on the platform and in a variety of smaller research projects. Start-ups, IT service providers and research groups can use the platform to offer mobile apps, such as health apps or apps for treating and monitoring patients with chronic illnesses. MIDATA is currently being used in a number of scientific health projects. In one particular project being conducted at University Hospital Zurich, for example, multiple sclerosis patients are being included in a study into the effect of treatments, which uses a tablet app to test their cognitive and motor skills. A further project, currently in development at ETH Zurich, will look at different training methods and the impact they have on muscle growth. More and more projects are being run that are directed at a wide section of the population and are of value to many – as is the case with the «Ally Science» project.

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