«MitrendS»

The tablet app for Multiple Sclerosis patients

«MitrendS»

MitrendS is a novel app that allows MS patients to easily document their illness from home and discuss it with their caregiver.

 

The app helps to diagnose disease progression more accurately, for more effective treatments.
Multiple sclerosis does have different effects in different patients. It is therefore very important to record the individually different symptoms of the disease and their course as accurately as possible for each individual patient, so that personalized therapies can be implemented. In today’s clinical practice, this is only possible to a limited extent or not at all. The MIDATA MitrendS project is a pioneer project of personalized medicine in the field of multiple sclerosis.

MitrendS allows the user to continuously test MS-relevant parameters such as perception, motor function of the hand and arm, gait, fatigue and mood. In MS, the course of the disease also depends strongly on external influences. This is why MitrendS can also record lifestyle factors and weather data.

 

All data collected with MitrendS are securely stored in MIDATA.
The new data collected with MitrendS are merged with existing patient data (from data silos of the university hospital; e.g. medical history, medication, data from imaging procedures, blood analyses, etc.). All data are transferred to MIDATA and stored securely. From the collected anonymous data of all users, the optimal and individually coordinated therapy approaches for each individual user can then be calculated using self-learning analysis programs (machine learning) developed by ETH researchers. These are then implemented by MS specialists at the University Hospital in Zurich.

Participation

Coordination

Prof. Dr. Ernst Hafen
ETH Zürich, Institut für Molekulare Systembiologie
Website

Stefano Napolitano
MIDATA

Multiple Sclerosis

Prof. Dr. med. Roland Martin und Prof. Dr. med. Andreas Lutterotti
UniversitätsSpital Zürich, Klinik für Neurologie
Website

MitrendS app

Prof. Serge Bignens and Dr. François von Kaenel
Berner Fachhochschule (BFH), Institut für Medizinische Informatik
Website

Data analysis

Prof. Dr. Gunnar Rätsch
ETH Zürich, Biomedizinische Informatik
Website

Ethics

Prof. Dr. Effy Vayena
ETH Zürich, Institut für Translationelle Medizin, Bioethik
Website

Supported by

Personalized Health and Related Technologies (PHTR), Website
Swiss Data Science Center (SDSC), Website
 

Further information

Schweizerische Multiple Sklerose Gesellschaft (SMSG)
Neurologie USZ
 

Video of the university of Zurich about the MS study

Projektpartner

The Bern University of Applied Sciences (BFH) offers an innovative didactic approach aimed at teaching, R&D and continuous training, using practical exercises to prepare students for professional activities in which scientific knowledge and methods are required.
Freedom and individual responsibility, entrepreneurial spirit and open-mindedness: ETH Zurich stands on a bedrock of true Swiss values. Our university for science and technology dates back to the year 1855, when the founders of modern-day Switzerland created it as a centre of innovation and knowledge.
At ETH Zurich, students discover an ideal environment for independent thinking, researchers a climate which inspires top performance. Situated in the heart of Europe, yet forging connections all over the world, ETH Zurich is pioneering effective solutions to the global challenges of today and tomorrow.

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The MIDATA data platform enables members of the public to compile their health records in a secure personal account free of charge and to determine if and how they are used in research projects. In this way, they can act as «citizen scientists», making an active contribution to medical research.
MIDATA serves as a data repository for its members and other participating members of the public. It is a non-profit cooperative facility that operates without offering financial incentives, similarly to blood donation services, for instance. The account holders are not paid for their intentional and voluntary «data donation». The revenue generated from the integration of their data into a scientific study is reinvested in the services offered on the platform and in a variety of smaller research projects. Start-ups, IT service providers and research groups can use the platform to offer mobile apps, such as health apps or apps for treating and monitoring patients with chronic illnesses. MIDATA is currently being used in a number of scientific health projects. In one particular project being conducted at University Hospital Zurich, for example, multiple sclerosis patients are being included in a study into the effect of treatments, which uses a tablet app to test their cognitive and motor skills. A further project, currently in development at ETH Zurich, will look at different training methods and the impact they have on muscle growth. More and more projects are being run that are directed at a wide section of the population and are of value to many – as is the case with the «Ally Science» project.

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From its central location in Zurich, the USZ university hospital provides primary health care and cutting-edge medicine. Its services are available to everyone, every day of the year, 24 hours a day.